Did Vaccines Cause My Son’s Autism? ~ Part One

Wondering about Vaccines and Autism? I am too - Here is what happened to my son after getting his vaccines. Do you think there is a link between autism and vaccines?

We've tried many natural methods to heal our son's autism and anxiety, and we've seen some natural healing from our efforts, but one of the puzzles that I wonder about is the relationship between vaccines and autism.

Vaccines and autism are two hot topics today.

Very hot.

I personally used to think nothing about vaccines.  Every kid just gets 'em, right?

In fact, I used to think nothing about a lot of things.

All that changed with the birth of my first son — And it didn't stop there.

I Used to Think….

I used to think that:

  1.  Vaccines were just vaccines
  2. Autism was increasing only because more doctors are diagnosing them.

    Then my son got autism.

3. Food allergies and special diets were just people's way of trying to go on a diet and be thin.

Then my son got life threatening food allergies, and now there are some foods that I can't tolerate.

4.  Alternative therapies like chiropractic, homeopathy, essential oils etc., were just quackery.

I've now used chiropractic extensively, am consulting with a homeopath, and use essential oils all the times.

Yes, I was pretty closed-minded.

And wrong.

Now, I don't purport to know everything about vaccines, nor everything about autism.

But I will share with you the truth about what happened to our son as it related to his vaccines and his autism so you can learn a little more about us.  About one part of our health journey – and it might get you thinking about vaccines yourself.
My oldest son was born 11 years ago at home, under the care of a very special doctor in Illinois, Dr. George Elvove.

I didn't seek out a home birth doctor – but I ended up with one.  That's the topic of another post :-).

Dr. Elvove was special in many ways.  He was one of only two doctors whom I found in Illinois who would deliver a baby at home.

And I think he saved us untold misery in our son's life.

My son was a pretty big baby and his delivery was nothing short of very difficult horrible.  Almost impossible, in fact.

But I we did it.  (This is also a topic for another post–home birth and all that…)

At first, after he was born, things were pretty smooth.  My baby nursed well, and he was the highlight of my life–but things soon changed.

Our “Sensitive” Son

He started sleeping horribly, waking every 30 minutes, and after 10 of those 30 minute stretches (think total of 5 hours of sleep :-(), he was up.

Then, he was diagnosed with life-threatening food allergies.

Our pediatrician wisely told us that we had a very sensitive child and that we should proceed slowly with vaccinations.

So we did.

He got the HIB.  And that was about it.  Maybe one or two more.  But nothing else.

Our son grew, but gradually his peculiarities became evident.

He was described as:

  • a very intense baby
  • having an “other worldliness” about him
  • seeming to be “wise beyond his years

Those things were endearing, (except for the “intense” part at times), but there were other things that seemed “out of sorts.”

He:

  • liked to memorize (he memorized children's books and hymns at age 2)
  • had OCD tendencies and repetitive behaviors
  • didn't play with other children well, if at all

I brought all of these things up to several physicians, but no one thought we were dealing with autism.

Vaccines and Autism –
When Things Changed for Our Son

Then at 6 years of age, everything changed.

Around our son's fifth birthday, we started getting pressure from our new pediatrician (in Michigan) to move ahead with the vaccinations.  (This was the same physician who didn't want to give me a referral to on oral surgeon when it seemed apparent that my son had a recurrent near fatal condition from a mercury filling.  See why I switched doctors?)

My husband and I read different articles and talked with friends at church and came to the conclusion that perhaps we were being scared for no reason and that we should move forward with the recommended vaccine schedule.

(See, a lot of the literature out there on autism and vaccines states that there really isn't a link.  Most people who think that there is a link between vaccines and autism blame the MMR vaccine, which is given around 2 years of age.  The typical diagnosis of autism comes around age 2.  So there is a growing concern among lot of parents [and some doctors] think that something is going on between vaccines [particularly the MMR] and autism.)

The mainstream medical community just thinks that it's a coincidence.

I wasn't sure.

I'd read a lot of books and articles about the supposed links between autism and vaccines, but I felt that perhaps I was worrying about nothing.

Surely all of these new autism diagnoses were just doctors over-diagnosing, right?  Surely they just wanted to prescribe drugs and make money somehow.

Right?

But then again, Dr. Elvove's partner said that she thought there might be something to it.  She had been a vaccine / autism link skeptic, but said that she wasn't so sure anymore.

Just too many parents had seen their children take a dramatic turn for the worse after an onslaught of vaccines – particularly the MMR.

Well, anyway, since we were well passed age 2, we thought that surely our son was old enough to handle a few shots now, right?

Maybe not.

Tomorrow, I will share with you Part Two of Did Vaccines Cause My Son's Autism.

It'll get you thinking – Just like it did me.

In the meantime, if you'd like to read more about our journey with autism, you might wish to read:

And here's a good book to consider regarding autism, etc.: (Please note there are affiliate links in this post. If you make a purchase after clicking on them I might make a commission – your support is much appreciated and helps keep this free resource up and running.

Healing the New Childhood Epidemics

Dr. Bock presents his hypothesis of the relation between a number of pervasive childhood disorders.  The end of the book includes a suggested “scaled back” vaccine schedule for those wishing to vaccinate, but wanting to be cautious in their approach to vaccinations.

Another that is lauded in the “natural autism community” is:

Evidence of Harm
I personally think that the vaccines were too much for him and that they “threw him over the edge”.

{Photo Source: http://www.flickr.com/photos/europedistrict/6263270500/}

These comments do not necessarily reflect the opinions of Whole New Mom, LLC.

Comments

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  1. I just found your blog tonight and was reading a bit of your housekeeping tip posts. I was liking it a bit, even with the numerous editing errors, but after reading this, I’m done. It really upsets me to see people spreading inaccuracies that can end up harming others who believe them.
    -Fromme, an Autistic girl that’s actually less retarded than you are portraying yourself to be in this post.

    • I was typing so quickly that I missed a space between in “fromme”, it should read “from me”.

    • Hello Bethenia. I’m sorry you feel this way. About the editing errors, I’m not perfect and we have a busy household. If there is something that was glaring I’d be happy to address it. As for the inaccuracies, what do you think that they are?

      Your signature is very insulting. Please do refrain from that kind of speech if you come back – and if you are, indeed a real person not using a fake email address. I’m surprised that you would make such accusations and then use the word “retarded” in a comment. Thanks again.

      • The inaccuracies of this whole post (and the follow-up): that vaccines are what cause or “trigger” autism. It’s completely false. When you and others spread these types of lies, it is harmful to other people who could die from anything that could have been prevented through a vaccine. Just imagine someone reads your post and it sticks in their mind. Then later, they have a child that needs a vaccine but they refuse it because they’re afraid their child might “get” autism and that seems like such a terrible thing because of the mothers who have told others that it’s so hard and that something is wrong with their autistic child.
        In the follow up post you made to this you said “What was happening? What would my life become now?” and “We were truly prisoners in our own home while our son suffered from up to 30 unstoppable tantrums per day.” I just feel that, while one person in a family does affect the whole family, it hurts that you seem more concerned with your own life than with his. And what you’ve described aren’t tantrums, but meltdowns. They’re two different things and you can’t approach a meltdown the same way you would a tantrum. With the right approach, you will have greater results, Of course you have to find out what approach works best for your child because everyone is different.
        It is insulting to me and I get very emotional when people talk about their own struggles while caring for other people who have the real struggle. I took care of my grandmother before she passed away from Alzheimer’s a few years ago. I went online and found support groups that I thought would help me find ideas to help her and make her life easier. But what I found instead were people complaining about all they go through. how burnt out they are, how they can’t stand their family member or patient asking the same questions over and over or how they wander off. Instead of being frightened or worried, most people were angry and felt like they needed support because they had this burden of a person ruining their life. They didn’t think about how scared and confused the person was when they would not know what was going on or where they were going. Sometimes I can see similarities between people caring for an person with alzheimer’s and people caring for a person with other kinds of “special needs”.

        • Hello Bethenia. Thanks for replying. Here are my thoughts:

          The inaccuracies of this whole post (and the follow-up): that vaccines are what cause or “trigger” autism. It’s completely false.

          There are monies being paid out to families who have autistic children whose autism developed after a vaccine. It’s coming from the Vaccine Compensation Program. There has never been a study published comparing vaxxed to non vaxxed children regarding autism. I personally think that there are multiple causes for autism and that they often reside in the gut, which is something commonly put forth by experts on the subject including Martha Herbert of Harvard. How do you know it is completely false? Do you have evidence to make that point? I have lots of evidence showing links b/t autism and vaccines and other issues.

          When you and others spread these types of lies, it is harmful to other people who could die from anything that could have been prevented through a vaccine.

          I am not anti-vaccine but I think we are giving too many too quickly and that they haven’t been tested enough. Have you seen the movie VAXXED? I want the medical community to look at these things more closely. Our mainstream ped told me that the only reason that the chicken pox vaccine came about was to allow mothers to not take time off of work.

          Just imagine someone reads your post and it sticks in their mind. Then later, they have a child that needs a vaccine but they refuse it because they’re afraid their child might “get” autism and that seems like such a terrible thing because of the mothers who have told others that it’s so hard and that something is wrong with their autistic child.

          Yes, all things are a weighing of risk and benefit. I am mainly saying that there should be studies done and that vaccines should be given out in fewer amounts (some are not necessary) and at a later age and not all together.

          In the follow up post you made to this you said “What was happening? What would my life become now?” and “We were truly prisoners in our own home while our son suffered from up to 30 unstoppable tantrums per day.” I just feel that, while one person in a family does affect the whole family, it hurts that you seem more concerned with your own life than with his. And what you’ve described aren’t tantrums, but meltdowns. They’re two different things and you can’t approach a meltdown the same way you would a tantrum. With the right approach, you will have greater results, Of course you have to find out what approach works best for your child because everyone is different.

          You know nothing about what I went through. Why do you think it was a meltdown and not a tantrum? And how do you know what approaches we tried and what we didn’t? We consulted with a number of experts and it was terrible. Just terrible. Do you purport that you could advise the parent of another autistic child who paints the walls with his or her feces that they should just get the right approach and get greater results? And you really think that I was more concerned with my life than his simply b/c I talked about how this affected our family? I would die to save my child’s life and I have sacrificed tons of time and money and more for him. But the autism has affected our family gravely.

          It is insulting to me and I get very emotional when people talk about their own struggles while caring for other people who have the real struggle. I took care of my grandmother before she passed away from Alzheimer’s a few years ago. I went online and found support groups that I thought would help me find ideas to help her and make her life easier. But what I found instead were people complaining about all they go through. how burnt out they are, how they can’t stand their family member or patient asking the same questions over and over or how they wander off. Instead of being frightened or worried, most people were angry and felt like they needed support because they had this burden of a person ruining their life. They didn’t think about how scared and confused the person was when they would not know what was going on or where they were going. Sometimes I can see similarities between people caring for an person with alzheimer’s and people caring for a person with other kinds of “special needs”.

          I know better now why you wrote what you did. Caring for someone w/ Alzheimer’s is hard. I know my son has a hard time being on the spectrum. Thank God he is doing better now, but some days are still hard. Just b/c someone is expressing their frustration w/ how these conditions are affecting one’s life doesn’t mean that we don’t value the person who has the condition. That is a false dichotomy. I love my son. When his condition expresses itself in a way that makes our lives difficult it is hard to endure it, but endure and press onward we must.

          I hope that clarifies things.

          • You asked how I know it’s false. I had vaccines when I was a child. I don’t know which I had and my mother doesn’t remember. But I remember going to the clinic and having the shots. I know I exhibited signs of autism before I ever received them and even on that day at the clinic before and during the shot. So, I’m sure that vaccines didn’t cause my own autism and that it was something I had before I was born. I don’t keep research when I read medical journals and studies because I mostly read for my own pleasure and I remember what I’ve read, perhaps I should start saving articles to reference.
            You’re right when you say I know nothing about what you went through -well, other than what you’ve actually said you went through, but only that information is what I based my comment on. The reason I think it was a meltdown opposed to a tantrum is based on my own experiences. When I read your post, I saw images of me going through the same thing and I remember how I felt every time I was overwhelmed. I don’t know what approaches you tried/didn’t try and didn’t say I did know. I was simply saying that some work and some don’t and the reasons some work and some don’t aren’t just because of the approach itself, but because of what’s going on to necessitate the approach. I have difficulties explaining exactly what I’m thinking in a way that others will understand the fullness of what I am saying, but I’ll try. You asked, “Do you purport that you could advise the parent of another autistic child who paints the walls with his or her feces that they should just get the right approach and get greater results?” Well, in a way, yes; anyone will obviously have greater results with the right approach to anything – one wouldn’t have greater results with a wrong approach, would they? But when you say it like that, I feel like I was coming across as someone very annoying and sort of dismissing the problem by saying “Oh, just try something different and it will all go away and be better”. That’s not how I meant it at all. I struggle with a lot of things myself and people tell me things to try to deal with my struggles. The best example I can think of is one of my biggest problems. I live alone and stay home a lot, sometimes for months at a time. Some people say I just need to get out of the house to feel better. But I already know that getting out may help. The problem is getting to the point where I feel like I can leave and I don’t know how to motivate myself to do that (and many other things). So, their approach doesn’t work for me because it focuses only on the fact that I’m staying home but not the reason why I am staying home. For a parent approaching a child that spreads feces on the walls, I could imagine that they already know they need to focus on why he does it along with the fact that he does it. As for tantrums verses meltdowns, some parents don’t know the difference. Looking back on my childhood, I see that my own parents didn’t know the difference and I really wish they had.
            “Just b/c someone is expressing their frustration w/ how these conditions are affecting one’s life doesn’t mean that we don’t value the person who has the condition.” This is difficult for me. I completely understand what you mean but at the same time I have at least six conflicting thoughts. I don’t think you don’t love or value your son. Have you ever been sick and had someone somewhat jokingly say “Ooh, stay away from me! I can’t get sick!”? I’ve heard people say that to myself and others numerous times. It makes me feel like the people saying it are selfish in trying to stay away from someone when they should be willing to visit them and bring them soup and sit by their bedside to keep them company and show that they care. But I also know that it does suck being sick and no one would want to be infected by contagions. You see how I have different views on that? It’s the same way I have different views on some of the things you have said. And, maybe, I’m taking your words and combining them with all my own experiences and thoughts in ways you never intended because I’m autistic and that’s just something I do. But, if I am doing that and getting emotional about things you and other people say, do you wonder if your son may one day do the same and take something you said here the wrong way? I hope he doesn’t. I hope you’re a better parent than my parents.

          • Hello again. Sorry for the delay in responding. Here are my thoughts in w/ yours:

            You asked how I know it’s false. I had vaccines when I was a child. I don’t know which I had and my mother doesn’t remember. But I remember going to the clinic and having the shots. I know I exhibited signs of autism before I ever received them and even on that day at the clinic before and during the shot. So, I’m sure that vaccines didn’t cause my own autism and that it was something I had before I was born.

            Yes, of course one can have signs before and signs after. But your experience doesn’t dictate what is true for everyone just as mine doesn’t. I don’t think that my son didn’t show signs before, but he did get much, much worse. And you can see it in his photos. He had amazing eye contact and very natural facial expressions prior to the vaccines. After that, he didn’t. His photo expressions are very clearly different. It’s very bizarre to me looking at his older photos and seeing the difference. Something changed.

            I don’t keep research when I read medical journals and studies because I mostly read for my own pleasure and I remember what I’ve read, perhaps I should start saving articles to reference.
            You’re right when you say I know nothing about what you went through -well, other than what you’ve actually said you went through, but only that information is what I based my comment on. The reason I think it was a meltdown opposed to a tantrum is based on my own experiences. When I read your post, I saw images of me going through the same thing and I remember how I felt every time I was overwhelmed. I don’t know what approaches you tried/didn’t try and didn’t say I did know. I was simply saying that some work and some don’t and the reasons some work and some don’t aren’t just because of the approach itself, but because of what’s going on to necessitate the approach.

            We tried many many things. Discipline to love to ignoring. Nothing seemed to work. I remember the day when my husband heard a psychologist on the radio who said “When typical discipline doesn’t work you can tell you have a special needs child.” Something odd was going on w/ our son. Nothing seemed to work. And if something did it was only maybe once. And then it didn’t ever work again.

            I have difficulties explaining exactly what I’m thinking in a way that others will understand the fullness of what I am saying, but I’ll try. You asked, “Do you purport that you could advise the parent of another autistic child who paints the walls with his or her feces that they should just get the right approach and get greater results?” Well, in a way, yes; anyone will obviously have greater results with the right approach to anything – one wouldn’t have greater results with a wrong approach, would they? But when you say it like that, I feel like I was coming across as someone very annoying and sort of dismissing the problem by saying “Oh, just try something different and it will all go away and be better”. That’s not how I meant it at all. I struggle with a lot of things myself and people tell me things to try to deal with my struggles. The best example I can think of is one of my biggest problems. I live alone and stay home a lot, sometimes for months at a time. Some people say I just need to get out of the house to feel better. But I already know that getting out may help. The problem is getting to the point where I feel like I can leave and I don’t know how to motivate myself to do that (and many other things). So, their approach doesn’t work for me because it focuses only on the fact that I’m staying home but not the reason why I am staying home. For a parent approaching a child that spreads feces on the walls, I could imagine that they already know they need to focus on why he does it along with the fact that he does it. As for tantrums verses meltdowns, some parents don’t know the difference. Looking back on my childhood, I see that my own parents didn’t know the difference and I really wish they had.

            My son was probably having meltdowns so you are right in saying that. My husband called them tantrums so that’s why I referred to them that way without thinking that his terminology wasn’t accurate. But the name didn’t typically affect our thinking….we couldn’t figure out if he needed discipline, time alone, hugs, whatever. It didn’t seem to help regardless of what we did. When we made changes to his diet / supplement routine we saw changes. Gentle speech in the house seems to help as well.

            “Just b/c someone is expressing their frustration w/ how these conditions are affecting one’s life doesn’t mean that we don’t value the person who has the condition.” This is difficult for me. I completely understand what you mean but at the same time I have at least six conflicting thoughts. I don’t think you don’t love or value your son. Have you ever been sick and had someone somewhat jokingly say “Ooh, stay away from me! I can’t get sick!”? I’ve heard people say that to myself and others numerous times. It makes me feel like the people saying it are selfish in trying to stay away from someone when they should be willing to visit them and bring them soup and sit by their bedside to keep them company and show that they care. But I also know that it does suck being sick and no one would want to be infected by contagions. You see how I have different views on that? It’s the same way I have different views on some of the things you have said. And, maybe, I’m taking your words and combining them with all my own experiences and thoughts in ways you never intended because I’m autistic and that’s just something I do. But, if I am doing that and getting emotional about things you and other people say, do you wonder if your son may one day do the same and take something you said here the wrong way? I hope he doesn’t. I hope you’re a better parent than my parents.

            I can’t say that I am a better parent than yours b/c I don’t know how to measure that and of course those kinds of things vary by the day, don’t they? I mess up frequently. I do try to say I am sorry whenever that happens but the messing up goes both ways and often as my son messes up often as well and I don’t think that his condition absolves him from needing to take responsibility for his behavior. Autism is messy and parenting an autistic child is messy. He has gifts that others don’t have for sure and we need to / try to focus on them, but it isn’t a simple and easy path. We do try to keep the communication open in our home so I think he feels free to say whatever he thinks and we try to address it.

            I hope this clarifies a few things. Thanks again for reading and for sharing your viewpoint.

          • I have to say something here and I’m very angry at how stupid people are and believe government lies!Growing up I had my shots too but down the road it came out (from the government that YES Experaments where done with our vaccines and are still going on also I have a friend that was a very healthy man till he got the flu shot Now he’s a very sickly man!He sued the government and won but he had to sign a paper releasing them of knowing it caused his problem what is wrong with this neglecting government so they basically paid him hush money why would anybody do this EXPOSE THEM FOR WHAT THEY ARE DOING DONT COVER IT UP
            WAKE UP FOR CHILDRENS SAKES

  2. No offense or anyhjng, but it seems like your kid had autism before he was vaccinated and it was just more noticable as he fot older

    • It’s possible. Or it’s possible that vaccines exacerbated the condition. This is a spectrum condition that we are talking about and there are no hard and fast answers for many but the correlation is getting stronger that toxins are having an effect on so many – cancer, autoimmune disease, autism, and more. There are too many vaccines. Period. And too little safety. Have you seen this comparison b/t vaccines today and those of yesteryears? http://www.drmomma.org/2011/01/cdc-mandatory-vaccine-schedule-1983-vs.html

  3. Do you realise how bad vaccinse are for you??? Read up on what they are made of and educate yourself! I’m sure God did not mean us to inject goat genes into our kids!
    Samuel

  4. My son was diagnosed with Hashimoto’s disease when he was just 12. This was completely unexpected and probably for about a year prior to this, I started seeing signs of autism in him. Hand flapping, needing to jump on a mini trampoline in the evenings, blowing raspberries with his lips. He always had developmental issues, he was language delayed, but then started talking up a storm after he turned two, he took longer to learn how to walk, then he was a toe walker, but I attributed both to his extremely flat feet. He had issues in school with learning to read and write and do math. He got intervention but I never really knew what was at the root of the problem. Then he got Hashimoto’s disease and I learned all about leaky gut syndrome and autoimmune diseases. I even learned about autoimmune autism and I believe that when you have a kid with a genetic predisposition to autism who then develops a leaky gut and is given immunizations, that the immunizations trigger the autoimmune response which leads to autism. My son is very high functioning and he does well overall. Looking back now though, I see that all the signs of autism were always there, they just got much more pronounced when his leaky gut was at it’s worst and he developed an autoimmune thyroid disease. He was never really interested in developing friendships with other kids, he would become intensely interested in one subject at a time and have to learn all he could about it until he had an encyclopedic knowledge of it, he had difficulty with fine and gross motor activities ( writing was difficult and never learned to ride a bike), was language delayed, has sensory oral issues (chews his toothbrush and needs to have things in his mouth). You would never guess it to look at him or talk with him, I think that maybe, in some ways, it was good that I didn’t know he was on the autism spectrum because I had the same expectations for him that I had for my daughter. But I do wish I had been aware because I could have gotten him OT and PT to address some of his sensory and motor issues. He hasn’t been officially diagnosed yet and that is our next step. He is on a gluten free, casein free diet now and have seen a big improvement in him with this diet. It is a crime that doctors do not take immunizations seriously. I think that before any child is given an immunization they need to be checked to see if they have a genetic predispostion for autism and whether or not they have a leaky gut. I think that this also explains why some kids develop autism from immunization while others do not. Parents CANNOT wait for Western medicine doctors to get clued in about this. You have to be your child’s advocate and do your research before you immunize.

  5. Adrienne, I saw our son become autistic as a result of vaccinations. Just know that most of what we are told is simply lies. Believe your own experiences. I think autism may be caused by other things in the environment as well. The globalist corporations that run our ‘democracy’ have cover for the thousands of toxins they create as there are so many now in the environment that it is virtually impossible to do a epidemiological study any more. best wishes on your journey, you are on the right path.

  6. Kate & Zena says:

    Hi,

    I know you posted this a long time ago, but I found you via Pinterest and I wanted to express my thoughts. I am Autistic like your son. In fact, my story is much like your son’s. My birth was, in my mom’s words, “traumatic.” I actually got stuck coming out and they had to use the big spoon forceps to get my shoulders out, so a horrible birth was had (we won’t mention the whole “being born blue” thing. That’s a whole different story.) I was also a BIG BABY, especially since I was three weeks premature (8 pounds 6 ounces.) I was described a lot like your son too except I plainly could not soothe myself EVER. I was not a self-soother. I would cry for hours (my mom can recount many a story of trying to shut me up. The swing became a life saver.)

    I, in fact, am a lot like your son. If you move something, I know exactly what you moved and I will throw a fit. Everything has a place. I like memorizing where things are so I don’t lose my mind. I have a crazy memory. I still don’t play well with people my own age most of the time…or younger and I’m 26. I get along fine with people older than me ironically enough. I prefer one-person only activities. And I love animals more than people.

    I regressed younger than your boy; I was about 2. I lost all of the speech I had learned in speech therapy; I learned sign language instead and relearn what I had again. I screamed at any tiny sound louder than a whisper because it hurt my ears. Boar bristle brushes hurt my head because the texture irritated me. My mom had to use her fingers instead.

    When my mom looks back on everything and looks at all of the new research on Autism, she realizes all of the struggles I ever had wasn’t ever due to a wrong vaccine or some other disorder like Cerebral Palsy (which I’ve also been diagnosed with), but really due to Autism. Your son has probably been Autistic since birth and didn’t get it from some vaccine. I don’t know who I would be if I weren’t Autistic, and I hope you can teach your boy that being Autistic is no different than being normal. We see the world through a different lens, but we really aren’t that different in the end.

    • HI and thanks for commenting. My son was larger than you, but not a preemie. He was 9 6. He couldn’t self soothe at all and gets along w/ those older and younger than him. Peers not so much. I consider getting a dog but we have allergies so that is going to take some thinking :).

      I suspect he had the autistic issues at birth but that possibly the vaccines exacerbated it. I might be wrong, but I still think so. I do appreciate your words about not seeing himself as “different” but there are for sure some real differences that we have to figure out how to help him navigate so he can more easily live independently. That is the hard thing right now. I wonder how that has been for you? Thanks so much!

      • Kate & Zena says:

        Well, independence is kind of in the eye of the beholder. I have a younger brother (almost 22 months younger) who is gifted. He is a big ol’ smart butt (insert profanity that belongs there); he would consider me VERY dependent. I am, according to the law, independent as my IQ is too high for SSI but I do get SNAP benefits. My parents consider me a hybrid. I am independent enough to do shopping, movies, go to my appointments and chores on my own. I can drive. I can attend school and do my homework without being told if I’m doing school. I can go to a store with my SNAP card and actually get healthy food and not go over my limit. All good, independent things.

        However, I don’t have enough social skills to get a job. Since I also have Lupus and a migraine disorder, even if I got a job, keeping it would be difficult as they both are unpredictable disorders. I can’t tolerate a lot of noise making apartment living difficult unless we found a place that had extremely strict noise restrictions. I physically need a dog and a human (that I know and trust) with me in order to feel safe. No parents for a few days and I start going literally insane. And I have serious issues with handling my own money. If I see yarn I love….forget about me saving for bills if I ever had to pay bills. I’ll buy yarn. Or makeup. Or art. I am HORRIBLE with money.

        Not every autistic is like me. I know plenty in my bowling group who live on their own or have jobs or both. Some are married or have relationships. Some have completely normal lives and some live at Lamb’s Farm, which is a community for people with disabilities.

        What I would really look into for your son is a a non-profit group that does activities or groups for people with developmental disabilities. They will be able to give you the help you need on the independence front and getting him into social groups and they’ll probably have activities for him. My bowling group is through a non-profit for developmental disabilities. I REALLY didn’t want to go at first, but I’ve been doing it for about four years now (I even own my own bowling gear now.) During the summer, along with bowling, I go to the water park through them so I can go down the water slides all day (I seriously love water slides.)

        Also, if you are allergic to dogs, there are dogs that aren’t as triggering (think of poodles, bichon frise or coton de touliers. Dogs with HAIR, not fur.) If dogs are fully out, think of a cat. Siberians are the best if you have allergies as they lack the triggering chemical for those who are allergic to cats and dogs. Most people who are allergic to cats can own a Siberian. I’m rather obsessed with dogs. I’m not a cat person (they tend to be a little too shy for me) but dogs…I know all about dogs!

        • Hi there. I can see what you are talking about. Have you by chance looked at the Autoimmune Paleo diet for Lupus? I have a friend who has been completely cured with a very similar eating regimen. Also, I find that interesting that you mention Lamb’s Farm as we used to live by there so I wonder if it’s the same place :).

          We have tried some social groups but he is so high functioning that they don’t work well for him. Maybe we could try again. We’ve done many activities with 2 local autism groups but the mixing with others has been very hard for him due to his functioning being so far advanced. A dog would be better for us and I was thinking miniature schnauzer as I had 2 when I was young and they were no trouble. We’ll see….thanks !

          • Kate & Zena says:

            I have looked at that diet. I have a very sensitive digestive system (thank you Autism) and it’s not feasible as I’m too picky. I eat organic, grass fed, hormone-free and antibiotic-free for the most part now and I’ve cut out most junk food except for my favorites (York Peppermint Patties and Cheez-its..I love them to death.) Lupus is a non-curable disorder, so while you can go into a sort of “remission,” you can’t ever be cured from it; you’ll always have it just like you’ll always have Epilepsy, even if you haven’t had a seizure in years (I’ve been seizure-free for four years now.)

            I am considered very high functioning and groups are not the most helpful for me either, but activities like bowling and going to the pool have been helpful. It was hard for me at first because I did consider myself “too high functioning” for them, but really I was just like them and had my own issues to work on. It’s not an issue of being on one end of the spectrum or the other, but it’s what your child takes out of it. I’ve had to learn patience, how to talk to people other than people just like me (which is HARD because I am non-verbal in new situations), come out of my shell and just generally be more tolerant. It took me a few years, but I get better every year. I’m able to confront others and tell them I don’t like it when they take my bowling ball now. I used to have to go to my mom for that. I’m able to tolerate a larger sound range too from doing these activities. When my grandma died this summer, I didn’t hide behind my mom or dad like I normally do, but I talked to people and I waved hi as I don’t liked being touched still.

            I guess what I’m saying is that sometimes you have to give them a chance. Give it more than one or two times. My mom literally dragged me the first three bowling weeks before I got into it. It takes some time to see progress.

            And if you still don’t see it, maybe try “neurotypical” activities! You never know, I did both! I did ballet, cheerleading (for a year), figure skating, karate and choir (for over 10 years!) He’ll find something where he fits in!

          • Nice – very nice. We haven’t done much w/ those groups for awhile now – but we did do a fun park over the summer. And he took bowling lessons and he plays hockey and we’re involved at church. So we are doing those things.

            Thanks for the encouragement!

  7. im not discounting the vaccine shot. you should question stuff.
    i saw something on bill mayer show. it said that 90% of fish are mislabeled. meaning they can come from anywhere. also meaning if you eat it there is a possiblity it has mercury in it. maybe its the vaccine, maybe its the fish and maybe its both.
    on a not so good topic, point of the vaccine is to prevent major sickness. we do those thing so we dont windup like 3rd world countries being wipeout by sickness. we take for granted what medicene has done for us. one day it will come down to this one kid who didnt get his shot and causes a uncontroled small pox epidemic. you should not aviod getting shots, its better to have autims then be death.
    sorry for your pain and i wish you well. sorry if this is insensitive.

    • Thanks for your comment. I am not saying all autism is caused by vaccines and I am not saying that vaccines are what cause it. I am saying that vaccines are full of things that they ought not to contain and that they give too many of them. I am “on the fence” about what vaccines are truly useful and necessary. Clearly things are out of control as far as the amount, how many we give at one time and what is in them. Thanks.

    • Paul,I’m just a reader of this blog but I have a very strong feeling about vaccines because I lost my precious son. Just one point I want to make for you is that one child unvaccinated is not going to kill a bunch of children that have been vaccinated. I think you need to do a little more research before you make hysterical statements.

  8. I have 4 vaccine injured children. Yah I said 4. YOu’d think I would have learned earlier!! My first child had her 6 month shots and screamed for the better part of a day. She lost her milestones. We were finally able to fully recover her by age 9. At age 8, she had a shot in her leg and couldn’t walk for 3 days. My son, was fine and had his MMR and tripedia at age 15 months. HIs left eye immediately turned in and he lost his milestones. He has high functioning autism. Of course I knew nothing of vaccines and the dangers, so I carried on. My third child had severe chronic ear infections her first two years of life (ear infections are a side effect of vaccines). The infections stopped and she hasn’t had one since I stopped vaccinating her. My fourth child had his 6 month vaccines, his fever spiked to 105 and he had seizures. That is when I woke up. Almost 3 years later and we are still vaccine free and healthier than any kids we see. My daughter has a friend in kindergarten who started having a seizure disorder shortly after starting school, after receiveing his vaccines. I have know a lot of families who have vaccine injured kids, from minor ailments to the very drastic such as death. At the same time my son had his seizures, a 6 month old girl got her vaccines and had a fever of 105 and seizures. She was on life support for 2 weeks and died. Another 6 month child at the same time had the same vaccines and died of “SIDS” that night. SIDS is listed in many vaccine package inserts as an adverse event. A newborn, Ian, had had hep b before leaving the hospital. He got very sick and he died about 47 days later. Look at iansvoice.org. Also, go to http://www.vaxtruth.org and read meet the children. My son is one of those children. Vaccine injuries are very prevelant and very damaging. Until we, the parents are heard and listened to , it will continue.

    • Hello Marlene. I am so sorry about not getting to your comment earlier. I had a long list of ones to go back and when there are links in the comments I need to be especially careful. I am sorry about what you are dealing with. Have things gotten any better? I wonder if you’ve seen VAXXED. We just saw it last week and are going to do what we can on this issue.

      Take good care and hope you haven’t written off my blog due to my taking so long to respond.

  9. Thanks for this post, Adrienne. I want to introduce the idea of NOT vaccinating to a few couples close to me who have babies/young children. Would you recommend a particular website, article, or book? I don’t know if they would read a whole book at this time, but it would be good to know too what are trustworthy resources in the sea of information/opinions out there. Thanks!

  10. HI, there is still some confusion around this.. the research that led to people blaming MMR was in 2011/2012 withdrawn by the original authors,they apologised for getting it so wrong ….and for what they had put parents through…unfortunately the signs of autism often start to show around the same age as the injection…so it got blamed…any Dr who still pushes that old propaganda is way out of date…
    There is some new research linking autistic add adhd behaviour around that age to bisphenol A plastics…I think that is the right word…but further research is needed…they looked at exposure while in utero to that plastic…found in bottles and in lining tin cans…hope it helps…

    • I have not looked into this in great detail, as my aim has not been to prove a link but only to share my experience. At times, and with certain things, I am willing to state that I believe something unequivocally, but not typically. In this case, I will share that there is some interesting info on Mercola’s site about this that I would love to know your thoughts on.

      I do know that I personally have spoken with Temple Grandin and asked her about the link b/t autism and vaccines and she thinks that the research to this day is flawed and that the proper research hasn’t been done yet. I think she is a genius and is likely right.

      I think there are tons of factors and I don’t mean to be harsh about this but BPA is for sure not the only thing going on here. Environmental toxins, genetic tendencies, assaults to the immune system (like vaccines), diet….all of these, in my mind are causes. I hope to write more on this soon. That being said, I don’t like BPA :). I’d be interested in seeing the research but I do think that the pharma companies don’t want to admit a link of vaccines. Just like a lot of folks don’t want to admit the link b/t celiac disease and mental disease. I hope to write on that as well.